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ouch.

30 March 2008 By Leave a Comment

I stretched my helix this morning. I am complaining here b/c DH will just tell me it’s my own fault. I will just tell me that too.

My plug kept falling out, so I thought, hm, maybe the 2 will drop right in? Yah, prolly needed like a 3. So then I remember I saw some tapers in one of our jewelry boxes and thought one looked about a 2. So I checked. BINGO!

So I try to shove it in. Shove is a strong word. I gently pushed to see if it would drop in on it’s own, as the plug did not. No go.

I go in the bathroom, ask for some lube that isn’t the provon soap and DH hands me… lube. Astroglide to the rescue! So I lube up my ear. I line up the taper. In she goes! There she stops.

But it’s sooo close!

So I push. and push and push and push.

It never burned. It didn’t feel like a rip. It never bled. But it hurt. It was *right there*

I let go of the taper for a minute to get myself ready to just shove it in. Get a bigger hammer, right?

It falls out. Too much lube maybe?

I have a genius idea of trying to slide the eyelet in because, well, my ear fucking hurts by now. It slides right in. Yay!

Have I mentioned my ear hurts?

I have a non-swollen-but-slightly-painful-to-the-touch-can’t-sleep-on-it right ear. But it matches my left ear :-)

Yes, it’s my own damn fault. I did not damage the ear, it’s not torn or ripped or bleeding. I didn’t damage that cartilage b/c it was already gone. It just didn’t want to be stretched that last 1/32 of an inch. Stupid ear. That’ll show it who’s boss.

Filed Under: Body Modification Tagged With: , , ,

Exaustion

26 March 2008 By Leave a Comment

We had the home visit from ARC today. It ran three hours, and we didn’t get finished. Our (case worker?) will be back on Monday to finish up the in-take and do some other stuff.

In-Home Behavioral Supports In-Home Behavioral Supports

This program provides individuals and their caregivers the training and support necessary to be successful in addressing the needs of their child while in the natural home environment. The Community-Based Behavioral Services Program provides in-home behavioral services for children and adults who are diagnosed with a developmental disability/delay. Individualized behavior plans are designed to address maladaptive behaviors and teach functionally equivalent and adaptive skills. These plans are developed by Certified Associate Behavioral Analysts, Certified Behavior Analysts and approved/monitored by a Board Certified Behavior Analyst.

It’s based on income (so it wont cost a fortune) and basically they will be helping us identify and change how we react to Malachai and hopefully help him learn to adjust his behaviour. So the destructive things I’ve been mentioning lately, and him not doing his work, damn near all of it, even his sleep patterns to some extent, we will learn ways to compensate for them and redirect him more effectively.

I haven’t had a minute to sit today. I’m not used to not getting somewhat of a break lol I need a nap!

Filed Under: General Tagged With: , , , , ,

just some notes about M

26 March 2008 By Leave a Comment

They haven’t other than minimal use of PEC cards. This is kind of new – the school is *really* on top of helping out the kids who need it. This is new enough that last month when the unique aid was mentioned and dismissed it wasn’t a problem.

I purchased a huge set of PEC cards via eBay the other day, and the distributer said they could be sent in to the school for use as well (can’t be resold/passed around willy-nilly, but I can print them out for use here and school, etc..) so I burned them to disc to send in so the teacher could print/laminate the ones they need. I am hoping it helps.

He isn’t non-verbal and his language itself isn’t suffering, he just can’t speak in a manner conducive to anyone other than basically me and the speech teacher understanding him most of the time (and like I said, there are days I have trouble, usually when he picks a topic out of left field and I have no clue what the topic at hand is – if I know the topic I tend to know what he is saying). It is impacting his schooling b/c he went from one of the top reading groups to sliding down towards the bottom, and it seems to be happening across the board from what I understood from the teacher today.

I am hoping the PEC cards help as they not only have the picture on them, but have what it is written below. Once our printer is up and running I am going to print and laminate them for home use as well (my original intention for getting them).

Filed Under: Medical Tagged With: , , , , , ,

It’s sad.

25 March 2008 By Leave a Comment

We had a meeting at the school for Malachai today. We’ve applied for a unique aid as well as four weeks of extended school year so he isn’t completely without speech for the summer. He has stopped talking to most of the class, his teacher, the class aid. Stopped doing work, reading, etc. Why? They can’t understand him. He is self-stimming more and more by talking to himself (which he does at home as well, but for the most part we know what he is saying). He is more aware of his speech problems (he has a profound phonological delay) and it’s making him not want to do anything that involves talking. It makes me so sad for him.. I am not disappointed, or depressed, or angry or anything other than sad. I am so sad to know that my child is in any pain because of something he can’t help. It weighs on me.

We’ve applied for FlKidCare, so if we get approved we can potentially get private ST, OT and PT and not have to deal with ESY. That would be great, seeing as we planned to send them to camp 3 times a week for the summer. Kids deserve a break from structured school. Malachai needs the structure, yes, but it doesn’t all have to be learning. The camp we looked at is structured, but it mostly fun time, and would be great for him b/c it’s so active. He has no concept of his body in space, and the camp is mostly gymnastics, swimming, outdoor play, stuff where he could learn where he is.

Side story: Ms. Booth said he doesn’t play on the playground. He and his best friend hang out in the shade by the sand and play. They were doing calisthenics one day and Michael and I both started laughing at this. She said they were bending over to touch their toes, and he just fell right over. I can so see it. We explained he has no balance. It was funny. Maybe you had to be there.

She also said that he has the best disposition. Even when she is upset with him, or explaining he did something wrong, he just goes with the flow. Nods his head, and does what needs doing. He’s a good kid.

Anyway, that’s where I am today. It’s my dads birthday, but he doesn’t want a cake or anything. I need to pick M&S up from school after I get the boys. We’ll be in the car for a while today. Oh well.

Filed Under: Education, Medical, Mishpucha Tagged With: , , , , , ,

Oh fantastic!

18 March 2008 By Leave a Comment

I think we’re getting a Unique Aide for Malachai! We went in for a meeting last month (some of you might recall) and were told he didn’t really need one. Well, I got a call this morning from the office administrator saying the ESE specialist wanted a meeting to discuss a Unique Aide. She wants to get started before Spring Break so it gets done quicker. Yay!!

We also got the application process started for MedWaiver, an advocate, and a bunch of other stuff. Oh yah, and I filled out a new app for Fla Kid Care this morning. I just need to get Michael’s past two pay stubs to send in (I did the app online).

Did I mention that right after I finished filling out the FlaKidCare and making some calls about stuff the school called? The universe is smiling on me today.

Filed Under: Medical Tagged With: , , , ,
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