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I am a little stunned

20 August 2009 By Leave a Comment

Today at therapy S gave me the info I needed for the craniofacial team we need to see for Malachai. I knew it was gonna happen, and I am thrilled S had a contact at CMS to get this moving, I’m just a little… stunned.

I knew he would need major orthodontics. I did not realize until fairly recently just how much his jaw/mouth was impacting his speech. I mean, of course it was, but that much? Really? I had a majorly recessed jaw and I was never in speech. I had braces when I was 11, a normal orthodontic age (as far as I know anyway).

So tomorrow morning I will call the pediatrician about getting a referral to the craniofacial team (I got a name) and then I’ll call that office and make the appointment and then I’ll call CMS for the approval. Phew!

I know what craniofacial can entail at it’s worst… I wonder what it can entail at it’s best and where on that scale my little man will fall…

Filed Under: Medical, Mishpucha Tagged With: , , , , ,

Malachai’s first sleepover

19 August 2009 By 1 Comment

Mal slept out last night. The boys were picked up a little after 8. We told C & J that if there was any problem we’d come pick him up regardless of time.

Skip to this morning – no phone calls (I know, I kept waking up and checking my phone in case I slept through the ringer) and got a text that said they watched “Journey to the Center of the Earth” and they were all out by 10 last night. M didn’t get up once and slept through till morning. C told me he rubbed is head on his pillow for a while, but was otherwise all right.

He’s a little off from what I see, but… he was a little off yesterday too.

His ST is going to phone CMS for us this morning, and possibly an ortho, to find out what we can do about his jaw. It’s impeding his speech development. She thought we had this in motion last year, but when we decided not to pull his top teeth, everything else kind of stopped too. We’ll see what happens.

Filed Under: General Tagged With: , , , ,

Today… Oh today.

23 June 2009 By Leave a Comment

It was pouring this morning, thunder & lightning, the whole nine yards. We cuddled in bed (all of us) and watched Titan A.E. and then Michael got up and made breakfast.

Around 11 we made it out the door and to Best Buy. Michael got his phone this morning (he bought the 8gig that dropped down to 100$ – more on that later) and is in heaven. He’ll be fiddling with it all night I’m sure :-) He opted to get the “old” one instead of the new one as I told him if he did, he could spend the rest of what he saved on a tattoo book he wants to update. The author has a deal that he’ll send a check back if you return the old version to him, kind of a rebate for having purchased the original version. Yep, I bribed my man.

Then we dropped him off at work and went to therapy. Then on the way out the kids were horsing around and Dorian slammed Malachai’s arm (around the elbow) in the sliding door of the van. Poor kid. I spent five minutes trying to pop an instant cold pack which wouldn’t pack, so I spent ten minutes driving home with a wailing child. Called ahead and had an ice pack waiting on us. He seems OK now – gave him some ibuprofen for the swelling and he flipped through the new bento book that came. He’s on the computer now. Guess he’s all right :-) Dorian felt awful.

I have to go make dinner. I have garlic-ginger lo mein on the menu (it was a hit last week) but I didn’t defrost the chicken and I have two pot roasts that need to be made in the fridge. I think I waited too long though (which I did yesterday too) as they should have gone in the crock this morning. I forgot I wouldn’t be home at 1 to put it in. Tomorrow maybe… that leaves something for tonight though.

Tattooed a little yesterday. I like shading with the rotary better than the coil machine. Eshiva has the skully I did on her arm – silly girl. I love that the stencils make her so happy.

Filed Under: Art, Food, Mishpucha Tagged With: , , , , , , , ,

Today I…

8 June 2009 By Leave a Comment
  • cleaned out the game closet
  • practiced whip shading (um, I need more practice ;) )
  • went food shpping (Sams & Publix, spent almost double what I planned but got lots of goodness)
  • had sammies for dinner (turkey, roast beest, ham, swiss, provolone, muenster, yum!)
  • picked up an ipod/iphone dock for the dining room – we’ve been listening to lots of music there and my tiny travel speakers were dying
  • got a new bin for the compostables in the kitchen. it will live in the second sink, as we never use it (the garbage disposal isn’t hooked up to that sink, and no one ever remembers so it’s just off limits)
  • swept the dining room
  • cleaned the table off
  • did some work

And now Michael is playing D&D with Dor, Mal & Michael and I am watching Harry Potter (#1) with Eshiva. We went to see Night at the Museum last night, and it rocked. It’s definitely on the “to get” list. I think we’ll do some sand art tomorrow before Michael goes to work. I can’t believe it’s almost Tuesday already. Time flies.

I have some actual drawing to do for work – I want to get down to Pearls and replace my pencil though… I wonder if MIchael’s has one. It’s much closer. I wont spend as much too – Pearl’s is like an artists porn store lol Thank god we don’t have a brick & mortar Blicks near by!

Filed Under: Art, Mishpucha Tagged With: , , , , , , , , , , ,

Please to be remembering

18 May 2009 By Leave a Comment

When taking the autistic child to the movies, don’t forget these essential items:

1. A blanket. Not just any blanket. One big enough for him to curl up under and one heavy enough to give him tactile input.
2. A bribe, so he sits through the entire movie. Item #1 might negate the need for item #2.
3. A blanket. Yes, this is important enough to bear mentioning twice. Perhaps more than twice. Also, make sure it can be easily washed. Movie theatres are notoriously dirty.
4. Snacks, preferable a variety.

On the other hand, the eldest did very well. Covered his eyes during the Terminator previews (he is petrified that a terminator is coming to get him) but otherwise no incidents. He wanted to see a different movie, but we think he liked Star Trek – he just don’t admit it. Left Eshiva home with my dad where she got the special treat of watching Harry Potter (#2 – the one with the Phoenix, as she said lol) and taking a bath in Zaide’s giant bath tub. Special girl!

I had to fix the tub before we left, and clean it out. No one has used it in like, four years. I had to reset the faucet and tighten the screw. That’s it. Who knew? I also wrapped some PTFE tape around just to be safe (just below the o-ring, not over it). Good as new!

Yah, some people say don’t leave home without a towel. I say don’t leave home without a blanket. Preferably a weighted one… I may have to look into buying/making one specifically for things like this.

Filed Under: General, Mishpucha Tagged With: , , , , , , , ,
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