Autism Presentation

Snatched from Michael’s round up. The presentation was on the 20th.

This evening, Jenn and I attened a presentation on Autism and Developmental Disorders at the local ARC, presented by Dr. Robert Naseef. He is a psychologist with over 20 years experience specializing in autism and 28 years experience in autism as a father of a classically autistic son.

He spoke in a manner that helped explain a lot about the condition that people may not have understood. I know that I think I have a bit better grasp on Malachai’s situation after listening to him. He answer everyone’s questions, so much that he ran out of time.

He had a handout of the slide presentation he gave, which I may be able to scan and share, just not tonight. He also had a few books he recommeded. BTW I am making the titles clickable links to Amazon, if you are interested. The first is called Voices From the Spectrum which he compiled. It is a collection of letters and essay by people with autism and their close families. It sounded very interesting and we picked up a copy at the presentation.

The next was a book called Letters To Sam which is a collection of letters written by a grandfather who is paraplegic to his grandson who is on the spectrum.

The last one I can remember (only because it is in the handout) is Dr, Thompson’s Straight Talk on Autism which is apparently a book that has many helpful guides and tip s for parents. It hasn’t been released yet so the link is for pre-order.

It was very helpful presentation and I highly recommend checking with your local ARC and see if he will be doing a presentation in your area.

Afterward, we went to Barnes and Noble picked up a couple books that seemed to be good.

The first is called The Autistic Spectrum Parent’s Daily Helper
which seems to be a book that is a combination guide to and aids to help get your autistic child’s day under control.

The second is called Different Like Me: My Book of Autism Heroes which has a fanciful illustration of a famous person who was/is autistic from Albert Einstein, Dian Fossey and Wassily Kandinsky to Lewis Carroll, Sir Isaac Newton and Andy Warhol. We thought it would be a great book to show Malachai as he gets older to illustrate that his condition doesn’t have to hold him back.

All in all, it was a very educational evening.

I asked about the autism vs. being five thing… and yes, he is being five, so in a year a lot of the stuff that irritates me he may very well grow out of. He won’t grow out of being autistic (though he might learn better ways to cope, and therefore “get better,” in the same way I might learn to cope with an irritant, even if it doesn’t go away) but the things that are a problem this year might not be a problem next year simply by his growing a year older.

I asked about not revolving our entire family around him. I wont do it. I said, I was that child. Apparently there is a book coming out called “The Other Child” so I’ll pick that up. It’s from the perspective of a special needs parent, who was a special needs sibling. Sounds like something I could have written myself.  Anyway, he mentioned making special playdates with the other kids for one-on-one time. More or less what we are doing, are the things he mentioned.

I am making a calendar notebook for Malachai soon (I need to print some pages, our laser printer is out of ink and the ink jet is a waste of money as far as I am concerned, so maybe a trip to Kinko’s in the near future) – like in the next week – of his home schedule. I think I might make it a general family planner, but I’m not sure.

The presentation and handout touched on things that I never attributed to his diagnosis. Things like his toilet learning, food issues (OK, those I had, but not to this extent), general “lateness” in learning new skills. Dr. Naseef stateed that kids on the spectrum will learn, just later than neuro-normal kids. He used toilet training as an example, that the national average is 3, but ASD kids might be 3 – 6 or maybe later. Apply it to every milestone.

I just… I want to smack myself for not doing this sooner. Malachai is awesome. He is spot on with a lot, a lot of skills. Not so much with others. I can look back over my blogs from the past four years and I can see places where I questioned why he was or wasn’t doing something, or mentioned that something just wasn’t right. Why didn’t we get the testing sooner? I know why, and I don’t regret not pushing it or not listening to myself. I just wonder if he would have gotten more help, or whatever, if I had the time then to do all this, instead of waiting almost three years to address it.  I am not blaming me, I am just playing the what if game. I hate the what if game.

stolen meme

A) Four jobs I have had in my life (other than current job):
short order cook (fry cook), cashier in a pharmacy, web monkey, graphic artist (ok, two of the four are my current job, but those are the only things I’ve ever done)
B.) Four movies I would watch over and over:
I can think of tons of tv shows :/  OK, Heathers, Hot Shots, Pirates, and Oceans
C.) Four places I have lived
Parkersburg WV, Gaithersburg MD, Arlington VA, Coral Springs FL
D.) Four TV shows that I watch
Monk, Psych, House, Lost
E.) Four places I have been:
Austin, LA, Chicago, Orlando
F.) Four people who e-mail me (regularly):
Sarah, Mandy, Michael, Punky Moms
G.) Four of my favourite foods:
sushi, garlic rolls, babaganush, squash
H. ) Four places I would rather be right now:
in bed sleeping, shopping with free money, in my own shop, with Michael
J.) Four Things I am looking forward to this year:
seeing where Punky Moms goes this year, seeing where Michael goes this year, seeing what the kids do this year, finding time for me
K.) Four favourite authors:
Heinlein, Hamilton, Harrison, Lumley

Good things are upon us.

So…. more goodness!  Well, if you are into this sort of thing.

Malachai pulled out my Housewives Tarot last night thinking it was a game (well, it was in the game closet lol) so I gave it a shuffle today and pulled a single card. For those of you unfamiliar with the Housewives Tarot, you can see it here: http://www.housewivestarot.com/  I am pretty sure you can do a digital spread there too. I’ve always preferred actual cards.

I got the Three of Pentacles. (copying right from the booklet)

General pentacles info:
[quote]Pentacles deal with money matters, careers, possessions – everything real and tangible. You may find yourself admiring all you’ve worked so hard to attain, or watching in horror as it slips throgh your fingers and crashes to the floor. [/quote]

Card info:
[quote]
Praise. Recognition. Completion.

As the neighbors gaze on in awe, an industrious housewife puts the finishing touches on a new shelf to display her Melmac dinner plates. The three of pentacles finds you completing the initial stages of a project. You’ve hammered out all the details and screwed the competition. Now it’s time to discuss the next phase of development and to enjoy the praise and recognition you so rightly deserve. [/quote]

So by my rough interpretation, and because this work issue has been crowding my mind, good things are indeed upon us!

Things I started and never finished

I have a ton of sewing machines, an embroidery machine and a serger. All are gathering dust. To go along with that I have bins and bins full of fabric, patterns, and a dressform. Again, gathering dust.

I have an airbrust, compressor and inks. In a box, in the garage.

All that drawing stuff I just had Michael put away or take to the shop or whatever.

Paints, paintbrushes, canvases, paper, you name it.

Decoupage stuff.

Transfers.

DIY stencil stuff.

A bin of scrapbooking stuff (and two started books, one each for Dorian and Malachai). Didn’t even start one for Shivie.

Who knows what else.

My “new years resolution” will be easy for me, because I’ve already started it. Get rid of (by whatever means possible, be it selling, donating or throwing) all the stuff I don’t use and find out what I really want to do and make time for it.

eta – knitting, spinning, embroidery, cross stitch, photography, card making, soap making, candle making, a basket business, a candle business, and I’m sure I’m still missing stuff. Yah, follow through is not my middle name.

I feel sick.

and so very glad we’re not in Maryland right now. FromVaccine Awakening

Police with Dogs: Vaccinating Kids in Maryland

by Barbara Loe Fisher

“In Germany, they came first for the Communists, and I didn’t speak up because I wasn’t a Communist. Then they came for the Jews, and I didn’t speak up because I wasn’t a Jew. Then they came for the trade unionists, and I didn’t speak up because I wasn’t a trade unionist. Then they came for the Catholics, and I didn’t speak up because I was a Protestant. Then they came for me, and by that time no one was left to speak up.” – Martin Niemueller

I watched them bundled up against the cold winter air on Saturday, November 17, 2007, with their children and the letter from the State of Maryland threatening them with imprisonment or fines of $50 a day for failing to show proof their children had gotten a chickenpox or hepatitis B shot. Confused, angry or scared but mostly resigned, they were working mothers and fathers trudging toward the courthouse to face the Judge ordering them to get vaccinated or go to jail. Patrolling the scene was a SWAT team of policemen with dogs.

There were a few vaccine safety and informed consent advocates who showed up to witness what happened at the Prince George’s County Courthouse, among them Washington D.C. Attorney Jim Moody and autism activist Kelli Ann Davis, of SAFEMINDS and Charles Frohman, representing the American Association of Physicians and Surgeons (AAPS) http://www.aapsonline.org/press/nr-11-16-07.php as well as several Moms with children who developed autism after vaccination.

The U.S. media turned out but they were kept behind barricades and denied access into the building, as were the advocates and other members of the general public. There was no public oversight on what was happening to the parents and children inside.

I listened to or spoke with several mothers leaving the building with their children and learned the sad truth about what was happening behind the closely guarded, closed doors of the Courthouse. The parents were not being asked questions about their child’s medical history or whether the children had experienced health problems after previous vaccinations. The parents were not being given information about vaccine side effects or how to monitor their children for signs of vaccine reactions. They were not given forms for religious and medical exemptions to vaccination allowed in Maryland (see the video of my debate on CNN the day before with Vanderbilt’s Bill Schaffner, M.D. plus a video of a Saturday CNN interview with Jim Moody http://www.cnn.com/2007/US/11/17/maryland.vaccines/index.html#cnnSTCText)

Apparently, the children were being re-vaccinated with not just hepatitis B and chicken pox vaccines, the two new vaccines added to the Maryland school requirement list, but also with other required vaccines for which the public school system could find no record. One mother told me her children were up-to-date on their shots but the school system lost the records and she had to give her children all the required vaccines on the spot or face jail or fines.

My son, Chris, who became learning disabled after suffering a serious reaction to a fourth DPT shot in 1980, traveled with me to Maryland carrying a camera. After growing up watching his Mom work to change one-size-fits-all vaccine policies that were responsible for his vaccine reaction, Chris recently decided he wants to help NVIC put a face on what it means to be vaccine injured in America and what it means when Americans do not have the right to freely exercise informed consent to vaccination.

Chris set up his camera as I talked with a mother hundreds of yards from the front of the Courthouse door. I was about 12 inches inside a row of large cement balls that apparently were erected as a barrier to prevent terrorist attacks. I did not know I wasn’t supposed to be talking with this Mom inside the barrier. She was telling me about how she wasn’t given any information about vaccines before her children were injected with three vaccines.

All of a sudden, out of the corner of my eye I saw an armed guard with a dog emerge from the Courthouse and walk toward us. I got a sick feeling in the pit of my stomach. It was the dread that any citizen of any country in any century has ever felt when an armed guard with a dog starts advancing. As if we were common criminals or terrorists, he yelled and gestured to us to move behind the stones.

We moved without a word. And the sick feeling in the pit of my stomach told me we were being shown the power of the State wielded by that armed guard with the dog, just as parents inside the Courthouse were being shown the power of the State wielded by doctors with syringes.

There has been talk this past week about whether or not U.S. vaccine laws are, indeed, laws or whether they are simply recommendations that do not have the force of law behind them. Because the enactment of public health laws was not defined in the U.S. Constitution as a federal activity, in 1905 the U.S. Supreme Court affirmed the power of the states to pass public health laws requiring citizens to be vaccinated or re-vaccinated. http://biotech.law.lsu.edu/cases/vaccines/Jacobson_v_Massachusetts.htm

There is now more than 100 years of case law reinforcing the U.S. Supreme Court decision and the right of states to exercise police power to enforce vaccine laws. The post-911 enactment of the Homeland Security Law, the Model State Health Emergency Powers Act and Bioshield I and II makes it clear that the State will use police power to enforce quarantine or vaccination whenever the State chooses to wield that power. http://www.nvic.org/2005_11-15_NVIC_Sen%20Burr_BioShield%202_v7.pdf

The method of punishment for not obeying U.S. state vaccine laws is up to the state legislatures which make the laws. Today, many state legislatures have turned over vaccine law-making to unelected government health and education officials, who may enlist state attorneys and judges in the court system to enforce punishments. One of the punishments which many states have chosen when children have not received all state mandated vaccines is to bar children from attending school unless they file and the State approves exemptions to vaccination outlined by the State.

Those parents, who do not vaccinate their children and do not either make arrangements with the State to homeschool them or successfully file a state-approved exemption, are in violation of another state law: truancy laws. Failure to send your child to school in Maryland between the ages of 5 and 16 is a misdemeanor punishable by fines and jail time or both. This is the law which the Maryland government officials moved to enforce when they enlisted the help of State’s Attorney Glenn Ivey (D) and Judge C. Philip Nichols to turn parents of unvaccinated children into criminals.

In one news report, Judge Nichols was quoted as observing that the children looked unhappy waiting in line for their vaccinations. He is quoted as saying “It’s cute. It looks like their parents are dragging them to church.”

The big difference between being dragged into a Courthouse to get vaccinated and being dragged to church is that an hour of prayer rarely results in catastrophic brain injury or death. I still wonder how many of those children, who were injected with multiple vaccines in the Courthouse, are having vaccine reactions today. Their parents, many of whom are uninformed about how to recognize vaccine reactions, will never know what happened to their children if they regress into chronic poor health after the shots they were forced to get on Saturday.

We know that attacks on the religious and philosophical exemptions to vaccination in America are on the increase and are being led by vaccine patent holders like Paul Offit, M.D. and others who want to force vaccination. http://vaccineawakening.blogspot.com/search?q=attacks+on+vaccine+exemptions.

In 1996, a sixteen year old Milwaukee boy was handcuffed, stripped and jailed overnight because he hadn’t shown public school or county health authorities proof that he had gotten a second MMR shot. In 1997, I made a presentation to the National Vaccine Advisory Committee defending the moral right to exercise a conscientious belief exemption to vaccination and predicting what would happen if Americans did not win that freedom. http://www.nvic.org/Loe_Fisher/blfstmt050297.htm

What happened in Maryland this weekend is a final wake-up call for America.

Dozens of new vaccines are being rushed to market in the next decade and most will target children and adults for mandated use. Limiting the power of the State to force vaccination is all that stands between the people and tyranny.

There is only one way we will be free in the future: the laws must be changed so that every state allows a conscientious belief exemption to vaccination. Parents in Texas, after working with Parents Requesting Open Vaccine Education (PROVE) to educate the Texas legislature about the need for a conscientious belief exemption, got that exemption added in 2004 (http://www.vaccineinfo.net/). NVIC provided information and strategic support for PROVE’s seven year effort to secure strong informed consent and privacy protections in Texas vaccine laws but it was Dawn Richardson, Rebecca Rex and the people of Texas who got the job done.

If you want to work to educate your community and elected officials about vaccination and informed consent rights, contact the National Vaccine Information Center at NVICinfo@gmail.com. For more information about NVIC’s 25 years of advocacy work and to learn more about preventing vaccine reactions go to www.nvic.org. Please donate generously to this non-profit educational public service organization working to protect your freedom to choose the kind of health care you want for yourself and your family, including the freedom to choose which vaccines to use.

CNN: Vaccines or else: Parents Blast Order for Schoolchildren

http://www.cnn.com/2007/US/11/17/maryland.vaccines/index.html#cnnSTCText

Associated Press: Maryland Schools Get Tough on Vaccinations http://news.yahoo.com/s/ap/20071116/ap_on_re_us/shots_getting_tough

Labels: Maryland