This was the year. Of course I thought about it. But I didn’t obsess about it all day. And the day before. And the day after.
What is July 25? [Read more...]
I spent last night crying in my dreams
28 April 2010 By 2 Comments
but before you get upset for me, they were very happy tears. Up until not too long ago I had a sister named Erin. Erin had cerebral palsy. She had it from shortly after her birth (real shortly, she wasn’t breathing, which is what caused massive brain damage). Erin didn’t walk. She didn’t talk. She didn’t eat by mouth. She didn’t do much other than sit there and love pretty much everyone she came into contact with. Not a bad gig if you ask me, barring the obvious physical restrictions. [Read more...]
Happy Valentine’s Day
14 February 2010 By Leave a Comment
We don’t really celebrate Valentine’s Day, just because Michael makes sure to tell me every day that he loves me, and I do the same. It’s not a once-a-year type thing. You should celebrate your love for the people in your life every day. While some of the people I love are so very far away, they might fall by the wayside now and again, I try to let them know at other times of the year. I feel like Valentine’s is so forced – it’s something you are suppose to do. Michael made me a cute card and put it on my keyboard after I fell asleep last night. I didn’t get him a card this year. We are going out to dinner tomorrow night (and getting dressed up too!) and Eshiva picked out a cake that we’ll have tonight. [Read more...]
<3
11 April 2009 By Leave a Comment
I haven’t blogged in a while. My blog is more like a journal for me anyway. This is worthy of blogging though.
Eshiva just came up to me with a picture of Erin that is in a red heart frame.
She told me “Mommy, this is my love”
I asked if she knew who that was (of course not) and I told her.
She said “I love her, can I put this on the piano?”
I said of course. She’s carrying it around telling everyone she loves her, this is part of my love too. She’s a part of my family.
Malachai is telling her that she (Erin) is dead, and two people in our family are dead.
Eshiva is telling him she isn’t dead, she is a part of our family. T
They are going back and forth. It’s cute.
<3
Eshiva is named for Erin (for those who don’t know). She died in 03, Shivie never knew her (obviously) – I don’t know that Malachai even remembers her.
She just came up to me to tell me Erin is dead, but we love her and she is still a part of our family and we have a picture of her when she was alive.
AGE OF AUTISM: MMR: It’s ALL or NOTHING! Say goodbye to choice.
5 January 2009 By Leave a Comment
AGE OF AUTISM: MMR: It’s ALL or NOTHING! Say goodbye to choice..
Your choice to work with your pediatrician on safer vaccine schedule has just received a very large blow. Merck and Co. has decided to take away your option of separating the MMR, instead of getting the whole shebang at once. Forget those who may be predisposed to not handling 3 viruses at once; you know the weak, the infant who may need a bit more time. What if they are unable to take one of the viruses due to allergy of an ingredient, but have decided to go ahead with one or both of the others? Well too bad, allergy or not you have lost your right to choose. It’s now, all or nothing.
Merck has removed the option to split the MMR into it’s three components. Now you get all three at once, or none at all.
I’ve bitched and moaned about vaccines before. I don’t feel like doing it now. I just wonder, why remove a parents choice to get 2 out of 3 or 1 out of 3 in the belief they will at least do that? I mean, looking at it from a vaccinating parent point of view? I am not a vaccinating parent. I have an autistic child. I stand behind my decision with feet firmly planted in position.
What if I was the parent of a child with life threatening allergies? What if my child was alleric to product B but not A and C? I am fucked out of luck because I wont risk their life delivering A, B and C. Aren’t A and C better than nothing?
I just don’t understand. I am the last person to push vaccines, but I am the first to acknowledge the good they have done for us as a people in the past, why take away choices in the future?
