Quirky Mom, Quirky Family
We took our middle son to the pediatrician yesterday morning to address a few things – his stutters, some tics he’s developed, some we’ve been watching for a year or more, his in-toeing, his facial structure. You know, the usual. For us. [Read more...]
Hi!
Where to start… we went to Orlando this past weekend. Sorry local gals – we went up in one car and I knew I wouldn’t be able to get away so I didn’t even bother posting about it. I will be uploading pictures at some point, so expect a photo spam post.
We hit Animal Kingdom (something we almost never do), MGM (excuse me, Disney’s Hollywood Studios) & Magic Kingdom. We were up early enough to see them *open* on both Sunday & Monday. Not. In. Years. It was a real treat for the kids. We left around 2 PM on Monday and were home around 6PM (hit those rain storms headed up and back).
We’ll be back up in Sept or Oct, the boys want to stay at Wilderness Lodge – we’ll see. That will depend on if the work I am expecting comes through and a few other things as well. It’s their birthday trip, so I usually try to keep them in on the plans and such.
Tuesday morning we had M’s IEP. All is well. Again, we won’t know until the year starts if he gets his aid in the classroom for next year, but I hope so. Some goals were met, some are the same and we added some new ones. His speech went from being a profound delay at last years IEP to a mild, age appropriate delay. Whoo Fucking Hoo Mal! Our private speech gal is going to have her work cut out for her to keep him as a client, but I love her and she’s really awesome and I attribute most of his success to her. She said his /r/ sound really, really needs work 
I hope she can find a legitimate reason to keep him. He performs well in the speech room, but not as well outside. I think that alone means he should keep it up.
Tuesday night he was supposed to read a story he wrote at Barnes & Noble. I have video. It didn’t go well. He was all ready to read, went up there, and froze. Poor kid. I sat with him, and tried to convince him to read. No go.
Wednesday I got my hair done. My girl went in at 8AM for me! She is a peach. I was done by 10 and we went to Target (aka that vast time suck) and bought a box storage thing for outside for my new seat cushions, a couple of fans and some misc. other things we probably didn’t need at all. Wed afternoon is therapy with all the kids, where they act like animals and irritate the fuck out of me. Then we had dinner with my moms twin brother, his wife and their daughter. We almost never see them (they live in Reno) and my dad is still livid he didn’t bother to come out when mom was dying (and by the time he was going to come out he told him not to bother, there was no time and we’ll see you at the funeral in a few days. Fucker.). I told my Gram not to expect me to rearrange my entire day for family who doesn’t really want to see us again as I had to break a promise to Dorian to make dinner at a reasonable time.
Today I have been working, just dropped Fish off at work, and I am uploading pictures from, well, all of May. I’ll be making a few photo posts later on. It’s going to take all day to upload.
Our fence is complete! They will come out tomorrow or Monday to inspect it. It’s pouring now, so I can’t go enjoy it lol We’re having a party on Sunday, so just in time! I hope it doesn’t rain 
I think I “scheduled” it in between rain storms lol
Dor has his first sleepover weekend after next, so that’s exciting. We need to go get him some PJs and a gift to take with him.
And I think that’s everything!
When taking the autistic child to the movies, don’t forget these essential items:
1. A blanket. Not just any blanket. One big enough for him to curl up under and one heavy enough to give him tactile input.
2. A bribe, so he sits through the entire movie. Item #1 might negate the need for item #2.
3. A blanket. Yes, this is important enough to bear mentioning twice. Perhaps more than twice. Also, make sure it can be easily washed. Movie theatres are notoriously dirty.
4. Snacks, preferable a variety.
On the other hand, the eldest did very well. Covered his eyes during the Terminator previews (he is petrified that a terminator is coming to get him) but otherwise no incidents. He wanted to see a different movie, but we think he liked Star Trek – he just don’t admit it. Left Eshiva home with my dad where she got the special treat of watching Harry Potter (#2 – the one with the Phoenix, as she said lol) and taking a bath in Zaide’s giant bath tub. Special girl!
I had to fix the tub before we left, and clean it out. No one has used it in like, four years. I had to reset the faucet and tighten the screw. That’s it. Who knew? I also wrapped some PTFE tape around just to be safe (just below the o-ring, not over it). Good as new!
Yah, some people say don’t leave home without a towel. I say don’t leave home without a blanket. Preferably a weighted one… I may have to look into buying/making one specifically for things like this.
*Sitting at therapy – stewing
*Need to hit post
*Need to publish May news – late again
*had two kids here examine my tattoos and ears. Kids don’t bother me.
*moved moms day picnic to another park.
*did I mention I’m tired?
*need to bring fabric in from garage
Meant to post this on April 7 – not sure why it got stuck in my drafts.
Michael mentioned yesterday that Malachai is finally developing a personality of his own. He brought up how it was sort of blunted before, you could interact with him, but there wasn’t anything about it that screamed, this is me, I am Malachai.
He loves Alice Cooper. He wants to dress up like him for Halloween. He loves scary movies and fast rides. I kind of attribute part of that to his sensory issues (if he needs BIG input physically it makes sense he’d love roller coasters and stuff, and if he needs it physically, why wouldn’t he need BIG input mentally too? So scary stuff = more input to his brain) but it’s giving him and Michael something way cool to bond over.
He said something yesterday and I can’t remember what it was (Michael told me I should have posted then and there lol Silly me for not doing it) but it was what brought on this conversation. He might be coming up on seven, but he is finally turning into… himself. It is giving me great joy to see it happen. Dorian had his own personality around 3 or 4, and Eshiva is loaded with personality, but Mal… he was just kind of rolling along. Now he pops up with little quips and stories and is fierce about what he likes and doesn’t like and what he does and doesn’t want to do and why (as opposed to being engrossed in one thing and woe be unto you if you tried to do something else).
It’s not all sunshine and roses, but this is just amazing to me.
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