The more things change…

the more they stay the same. [Read more...]

Universal and Me

or why my weekend wasn’t the fun-filled action-packed vacation I was hoping for. [Read more...]

July 25 Came and Went

This was the year. Of course I thought about it. But I didn’t obsess about it all day. And the day before. And the day after.

What is July 25? [Read more...]

More Medical Updates

So we saw the ped about the referral this evening. He wanted us in because he thought a craniofacial specialist was a BIG DEAL (for what it’s worth, I totally agree) and wanted to see him again before writing the referral. I have no problem with this, I just wish the nurse on the phone had fucking said as much.

So he said he knew M had a facial deformity for a while now (thanks for mentioning that, doc) and had been keeping an eye on it. He also mentioned some deformity in the cheek bone/sinus cavity area. Can I interject here that I never, ever thought my son had a deformity. I was a little shocked at the casual use of the word. I know he has a severely recessed jaw – I had one too and it just required major orthodontics and no surgery (although it was threatened). His big squishy cheeks are not a deformity, they are big and squishy and I love to squish my cheeks into them. I just had to get that out. When I hear deformity I think of major, obvious things. Not minor “normal” things like recessed jaws and big squishy cheeks.

He said he’d like to see an orthodontist first. I said no problem, seeing on on Monday afternoon! He said the one we’re seeing is a good one, too. I told him I’d hold off on making the cranio-facial appointment until after the ortho.

He said he had never heard of the CF we were referred to by Susan (our ST) but when I told him he was out of Joe DiMaggio he said he must be good.

My head is kind of spinning – I am back to “is it braces or is it surgery?” and not sure which to hope for.

Dor was awesome at the dentist this morning like I said. It was two fillings, and he got dropped off at school around 11. He told me his lip felt better after he played whiffle ball.

Everything.

So, last Friday Michael took Dorian to the dentist at 8:30 for some fillings. At 9:40 he called me and told me he still hadn’t been seen. I told him to tell them to phone him to make a new appointment and walk out. We had somewhere to be at 10.

So he came home and I phone the dentist who then told me they would call on Monday because they have a new dentist working there and they hadn’t figured out a schedule. Fine.

His new appointment is for 7:30 tomorrow morning, so hopefully he will be in and out and in school on time or at least not too late. Then I have to find an orthodontist to see him because one of his upper teeth cannot come in because the other teeth are too crowded to let it by. We were told we could pull the eyetooth, but really that’s a temporary fix – he’ll need braces anyway. I hope the insurance will cover it, as it’s effecting his development, but if they don’t we were recommended to a local ortho who has a payment plan.

Malachai. Oh, Malachai. Malachai has an appointment tomorrow afternoon with the ped to get a referral for a craniofacial specialist AND he has an appointment for a consult with an ortho (not the one we’re looking to take Dorian too, but one who is a friend of his speech therapist) on Monday afternoon. They block out an entire hour to consult, take x-rays, etc.. Hopefully he will let her do the x-rays (this is the child who wont walk through the door if he sees the dentist chair) and maybe (maybe!) braces will correct his jaw and the craniofacial specialist can get chucked out the window. Of course, I don’t think braces are an ideal solution for him in terms of tolerating them… oh, nether option is a good option.

I feel like I have spent more time at the doctors, on the phone with the doctor, waiting for the doctor in the past month than I have in the past year. Crazy.

Eshiva started Dance yesterday and loved it. She was over the moon to be there. I am so glad she enjoys it. Dorian is starting MMA on Saturday (I think) and Malachai wants to do MMA too, but it’s on T & Th during his therapy. I am not paying the same amount for him to go once a week as Dor to go three times, so… he is SOL for now. I tried to convince him to take dance, but he isn’t interested (they have acro dance, so I thought he might be). Maybe he can do MMA when he finishes therapy? I don’t know when that will be.