Posts Tagged "August"
More Medical Updates
So we saw the ped about the referral this evening. He wanted us in because he thought a craniofacial specialist was a BIG DEAL (for what it’s worth, I totally agree) and wanted to see him again before writing the referral. I have no problem with this, I just wish the nurse on the phone had fucking said as much.
So he said he knew M had a facial deformity for a while now (thanks for mentioning that, doc) and had been keeping an eye on it. He also mentioned some deformity in the cheek bone/sinus cavity area. Can I interject here that I never, ever thought my son had a deformity. I was a little shocked at the casual use of the word. I know he has a severely recessed jaw – I had one too and it just required major orthodontics and no surgery (although it was threatened). His big squishy cheeks are not a deformity, they are big and squishy and I love to squish my cheeks into them. I just had to get that out. When I hear deformity I think of major, obvious things. Not minor “normal” things like recessed jaws and big squishy cheeks.
He said he’d like to see an orthodontist first. I said no problem, seeing on on Monday afternoon! He said the one we’re seeing is a good one, too. I told him I’d hold off on making the cranio-facial appointment until after the ortho.
He said he had never heard of the CF we were referred to by Susan (our ST) but when I told him he was out of Joe DiMaggio he said he must be good.
My head is kind of spinning – I am back to “is it braces or is it surgery?” and not sure which to hope for.
Dor was awesome at the dentist this morning like I said. It was two fillings, and he got dropped off at school around 11. He told me his lip felt better after he played whiffle ball.
Read MoreEverything.
So, last Friday Michael took Dorian to the dentist at 8:30 for some fillings. At 9:40 he called me and told me he still hadn’t been seen. I told him to tell them to phone him to make a new appointment and walk out. We had somewhere to be at 10.
So he came home and I phone the dentist who then told me they would call on Monday because they have a new dentist working there and they hadn’t figured out a schedule. Fine.
His new appointment is for 7:30 tomorrow morning, so hopefully he will be in and out and in school on time or at least not too late. Then I have to find an orthodontist to see him because one of his upper teeth cannot come in because the other teeth are too crowded to let it by. We were told we could pull the eyetooth, but really that’s a temporary fix – he’ll need braces anyway. I hope the insurance will cover it, as it’s effecting his development, but if they don’t we were recommended to a local ortho who has a payment plan.
Malachai. Oh, Malachai. Malachai has an appointment tomorrow afternoon with the ped to get a referral for a craniofacial specialist AND he has an appointment for a consult with an ortho (not the one we’re looking to take Dorian too, but one who is a friend of his speech therapist) on Monday afternoon. They block out an entire hour to consult, take x-rays, etc.. Hopefully he will let her do the x-rays (this is the child who wont walk through the door if he sees the dentist chair) and maybe (maybe!) braces will correct his jaw and the craniofacial specialist can get chucked out the window. Of course, I don’t think braces are an ideal solution for him in terms of tolerating them… oh, nether option is a good option.
I feel like I have spent more time at the doctors, on the phone with the doctor, waiting for the doctor in the past month than I have in the past year. Crazy.
Eshiva started Dance yesterday and loved it. She was over the moon to be there. I am so glad she enjoys it. Dorian is starting MMA on Saturday (I think) and Malachai wants to do MMA too, but it’s on T & Th during his therapy. I am not paying the same amount for him to go once a week as Dor to go three times, so… he is SOL for now. I tried to convince him to take dance, but he isn’t interested (they have acro dance, so I thought he might be). Maybe he can do MMA when he finishes therapy? I don’t know when that will be.
Read MoreEshiva’s New Bed
So, this is the bed – my friend gave the entire thing to us (including the mattress!) because they got it for their sons play room and he never used it. So, we got a new bed!
Because she isn’t near big enough for a loft bed, we’ve turned it over and made her a four poster bed.
I’m going to buy some tulle and maybe some matching fabric to wrap around the posts and sides and make her a “princess” bed. We’ve put the ladder in the garage in case we decide to turn it over later on (it’s a huge waste of space now and took up the “play area” in their room and I wish she was big enough to sleep in a loft).
Any ideas on how to attach said fabric other than attacking it with a hot glue gun? I can sort of wrap it, but I suspect it will slide down the posts.
^ The bed is on top of where it shows in the image. The opening for the ladder is to the wall and that space is just open underneath.
Read MoreFirst day of school

I have better images on my camera… in the car lol
My boys are off to second and third grade.
Dorian made the gifted and talented class this year! I was told all the kids in that class are smart – some naturally, some because their parents push them (my friend was room mom in the boys class last year, so she knows a lot of the kids) and I was also told that we’re probably the only two laid back moms in the room. Yep, my boy is that annoying kid who just “gets it” without trying too hard. I hope he is challenged this year. I also hear they are doing multiplication and geometry the first week! The teacher seated Dor and his best bud together, and has been told she should split them up ASAP. She said she was giving them a couple of weeks before she moves them around.
Malachai’s teacher has taught kindergarten for the past five years… I’m not sure how she will do in a room full of second graders. I only requested he not have the teacher Dor had last year – that would have been a wreck! I don’t know anything about his teacher other than that though. She seemed nice enough.
Eshiva went to her first day of Pre-K today. She bopped right out of the car and was on her way. No tears, no nothing. She was so excited to make her own friends. I am so proud of her. She is so social, and so intelligent – I’m glad we decided to send her this year instead of waiting for K.
My cousin is working on her masters in childhood education and was in town this weekend and spent an hour with Eshiva for one of her papers. She said E “tested” at a first grade reading readiness level. Either the bar has really dropped or E is a smarty pants. Guess which way I am leaning? ;)
Read MoreI am a little stunned
Today at therapy S gave me the info I needed for the craniofacial team we need to see for Malachai. I knew it was gonna happen, and I am thrilled S had a contact at CMS to get this moving, I’m just a little… stunned.
I knew he would need major orthodontics. I did not realize until fairly recently just how much his jaw/mouth was impacting his speech. I mean, of course it was, but that much? Really? I had a majorly recessed jaw and I was never in speech. I had braces when I was 11, a normal orthodontic age (as far as I know anyway).
So tomorrow morning I will call the pediatrician about getting a referral to the craniofacial team (I got a name) and then I’ll call that office and make the appointment and then I’ll call CMS for the approval. Phew!
I know what craniofacial can entail at it’s worst… I wonder what it can entail at it’s best and where on that scale my little man will fall…
Read More

