Autism/Autism Spectrum

I was talking on my LJ to a fellow mom who also has an Autism diagnosed child. She mentioned that the nitrous at the dentist might cause her son to feel as uncomfortable as the actual dental work. ETA: She explained that the nitrous feeling was enough to cause screaming and discomfort. I never thought about it. I expected Malachai to not like how the novacain made him feel. He is so sensitive to taste (everything is “spicy,” even foods I would consider mild… anything overly flavoured, it doesn’t have to be spicy like peppers or what most people consider “spicy”) and touch. I just never expected how the nitrous made him feel to be unpleasant. It makes me wonder if it did work better than I thought it did, but in a way that made him more sensitive to the pain, or at least, more sensitive to the sensation. It would make me yell too. We have another appointment next week to finish the work. To be honest, he was fine once he settled down and we go in the car. He is even willing to go back. I do not feel wasting time hoping to find an oral surgeon who can fully sedate him is worth the risk of not having insurance to pay for it.

Now, to the question. Do you have a child who has been diagnosed with Autism or anything on the Autism Spectrum? Can you tell me what “sets” them off? What makes them melt down, freak out, or otherwise cause massive problems to their day? Like I said, I never even thought the nitrous might be the culprit. What else am I not thinking of? I do not plan to spend my life avoiding potential triggers, but I would love to be aware of them and at least have it in the back of my mind that X might cause Malachai to have a melt down. Say a truck air horn freaks your child out. Well, I’d never think it would be a problem. I wouldn’t go out of my way to make sure he never hears one, but I would know that I need to pay more attention if we hear one, because it could potentially be an issue. I am aware all kids are different in all aspects, but there are also similarities. I just want to make a general sort of list to keep in mind of things that cause your child to have a melt down, whether it is a certain fabric, a certain sound, a social situation, whatever.

I spoke with the school psychologist today. I need to fill out a release form for our psychologist so they can chat. I also mentioned his problems are primarily social, and after a bit she asked how I thought Monday would go. I said there is a good chance it wont go well at all. When he started at HACS when he was 3 he wasn’t presenting with his problems, and last year when he went he knew most of the kids and somewhat the teacher. It was a small class and not overwhelming. This class is much larger, he wont know anyone. I see it being a problem. She said she would make sure she was in there to watch for potential problems. We go in for orientation tomorrow, so I hope that helps him as well.

Look, it’s content

Instead of multiple posts, I’ll put it all into one. I promise, I’ll try to break it up.

This morning we went to Edinea. I love going to see Chrissy. My eyebrows look lovely, as always. She commented on how bright my hair still is and I was told I have perfect skin (I love a good compliment). We had a nice chat about doggies and what she feeds hers (1/2 protein, 1/4 grain and 1/4 rice) – she does cook for her doggies, and our Miss Sasha seems to prefer people type food over dry doggie type food. Not that I blame her. I made our next appointment for the end of the month. It’s my little ray of pampering sunshine.

After we went to Best Buy. We got some coupons in the mail, so like good little consumers we had to go purchase things. Dorian spent some of his money on a Wii point card, so we split that. He decided to download Mario Kart 64 and save his other 500 points. We picked up a magazine, and some DVD’s. I eyeballed Zelda and Super Paper Mario. I think I’ll get Zelda next. SPM will wait until I’ve beaten plain old Paper Mario (downloaded for the Wii of course).

Came home, had lunch, cleaned with Michael & Sara. Sara did most of it. I’m going to have her finish the kitchen and pay her after.


Drumming up stuff for [Punky Moms]. Do you want to be published? Read these guidelines and submit submit submit! Your stories of course, not to me. I have enough responsibilities. There just isn’t room for a household slave . Come back for that after the kids are grown and moved out.

We’ve got our Sept news almost done. We have a big surprise to unveil along with the news. Exciting stuff!


I’ve been pretty busy. I am working on a bad ass logo. I am pleased with it so far.Bah, I had a whole post ready to post in my head and off it went. I’ve been having terrible memory problems lately. I’ll walk into a room and completely forget what I  was doing. I’ve been thinking about asking Michael to do things, thinking that I did indeed voice it outloud, only to get aggravated he didn’t do X and have it turn out I never really asked.

The dentist rocked

Who ever has a subject like that? The dentist we saw was fabulous. They had televisions attached to the seats to keep the kids occupied. X-Rays were digital. Everyone in the office was great with Dorian. The doctor herself was great.

Dorian needs extensive work. We’re going to knock him out, and get it all done in two visits. We go back on Thursday for the first one. He needs:

  • resin on three teeth (on at least three sides)
  • therapeutic pulpotomy (she called this a “baby root canal”)
  • sedative filling
  • pre-fab stainless steel crown
  • resin – one surface
  • a single tooth extraction (I am pretty sure this one is the top front tooth)
  • composite resin crown
  • analgesia (knock his ass out for this)

Then we go back for

  • resin on three teeth (on at least three sides)
  • two pre-fab stainless steel crowns
  • surgical removal of tooth (I think this is the lower one, but I could have this mixed up with the one that is coming out first)
  • composite resin crown
  • analgesia for this visit too

If she calculated the insurance right, we only have to pay about 500$ for all of this, and after it’s done, he will need just twice yearly cleanings, as well as sealant over any more adult teeth that come in to prevent this mess.

We also got the name of a dentist who can do Michael’s mouth, so we’ll find out how much he is, and if we can finance it. Let’s hope so!

Dorian did amazingly well. He is a little freaked about having teeth pulled, so we just said ok and let it go. I figure, he is going to be knocked out, and once it’s done, it’s done and he will be fine. Normally I do not advocate omitting or lying to kids about stuff  like this, but in this case, I think it’s called for. It will keep him calm, and it does have to be done.

We are also taking Malachai in on Thursday, hopefully the movie and the awesome doctor can keep him calm enough to make it into the seat and get his teeth checked out and cleaned. Hopefully. I explained what was up with him, and she said early morning appointments are usually best for kids like him. That made me confidant that she has had special needs before and wont freak out when he freaks out.

Talk about stressful

We went to social security this morning about Malachai. We got there with time to spare for our appointment. I thought we were meeting with the man I made the appointment with. Nope. We got Jesus lady. We were called back just a few minutes after our appointment time. Good start. Malachai does his freak out, try to hide inside my chest thing. No surprise. I got him settled down, playing with my PDA. We start answering questions.

She asked about our estimated income last year. I said no one stated we would need our taxes. She said no, listen to me, I never said you needed your taxes, I need an estimate of your gross income. Well duh lady, that would be on our taxes.I have no clue what we grossed last year. We guessed. She had actually wanted a weekly, but because Michael is commission, this is always hard to answer.

We went over everyone in the house.

We went over property (easy enough, we own nothing except the car, and that is only half paid off).

We went over life insurance (which we only opened a few months ago, so it hasn’t amassed anything).

We went over Malachais diagnosis,  his doctors, his past andfuture appointments. I filled out a questionnaire that made me realize my boy is smart, but he is on the slow to non-existent end of independent/communicative.

We were told that our income to property (or however they calculate it) meant he wouldn’t be eligible for much in the way of money, but it would mean Medicaid would come into play. Which was our goal, so I did a little back-flip. In my head.

She sent the info off to Tallahassee, and we’ll hear back whenever we hear back.

There is more, but I am still kind of flabbergasted. The woman had religious sayings and whatnot all over her desk. You literally could not look at a surface and not see something God related. It figures we get her. I can’t explain it, but it started before we evn got there, I felt like I should have worn long sleeves and my hair down. I come from (hah, because I am soooo old) a time when people with visible tattoos were looked down on, we not given jobs, and it was expected they needed some sort of hand out, because that was “the kind of people they are.” Well, fuck that! So I hate having to ask for assistance like this. We wouldn’t have to if the insurance was still effective. Michaels boss is looking into ins, but he needs it for three employees (himself included), so it is not like it’s going to be a huge price break like a larger company would have (where the company pays most of it anyway). While it would be nice, I am not holding my breath that there is something out there that is decent coverage and affordable. It isn’t my faith in J that is lacking, it is my faith in the system at large.

After social security we went to HACS and had Dorian’s tuition adjusted. The payment site was still showing the original payment, and not the new adjusted one. Can’t have that. So that is all fixed. I’ve written and need to mail the check for his books and trips fund. I set up the online payments, starting in September. I need to write the checks for give/get and  the building fund. Thank goodness those wont be deposited until Feb and May.

I need to order him some new shirts for school. This never ends.

We got a dog last night. A pure-bred yorkie. She’s a rescue. She is the sweetest thing. We’re taking her to the vet on Thursday (and the next few Thursdays) for a dip to help heal her skin. She has skin allergies, and her last owners mis-treated her badly and did not take care of her skin. Once she heals up we can have her properly groomed too. She’s been (from the looks of it) shaved down except her face. Her hair is pretty short, and very thin. I want to have the hair on her face/head cut a bit more, and the rest of it trimmed evenly so it grows in proper. We’re going to send her papers into the AKC just because (it’s pretty inexpensive, and the original owner never did… I don’t plan to breed her or show her, but it’s kind of neat to have them). I can’t believe the owners paid so much for her and mis-treated her so badly :( She just follows me around the house or naps at my feet. Cutie.

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Don’t understand the title? Michael whipped it out on me one night, many, many, many, insert more many’s here, moons ago. He held his hands as far apart as they could get, and said “I love you this much” and then held his fingers together and said “in a world this big.” All together now, Awwww!

So that is our thing. He hasn’t done it in a while, and I guess I mentioned it the other day, and there it was. Probably the sweetest way anyone has ever told me how much they love me, ever.

I posted last night, but I got a new tattoo. It says “Tempus Edax Rerum” and it’s on my wrist, below my phoenix. It means “Time, devourer of all things.” Michael thought it was kind of morbid. I think it’s perfect.

I wanted to go to Disney, but it looks like that might not pan out now. I hope it does, it was a birthday present.

I have an appointment at social security on next Tuesday. I hope that goes well! It’s for Malachai and I’m not really sure what to expect. I am not expecting anything, to be honest, but I am hoping it goes well.

We took Malachai by the schoolt his morning for what should have been a little “what do you know” type thing (letters, colors, shapes, you know, stuff my kids know by the time they’re three) and he freaked. I expected it. The woman doing it said they could do it once school starts. We meet with the ESE teacher in a few weeks, so maybe they can try again then. I explained that once he gets in his groove, it’ll be fine, he just needs to know who he is around.