Check out this bit of awesome!

I just wanted to point out the awesome that I just saw at the Whole Addiction site.

I had one of these, that I did myself, about 14 years ago (*gasp!*) and I was so proud of my new idea and how awesome it was (I was 15, everything was my idea and awesome, but that’s beside the point).

It was no where near as awesome as this. Mine was only two holes, and it was kind of a pain in the ass to set up. I pierced it myself, they weren’t even and were a little crooked on top of not being evenly spaced. This bit of love? Amazing. Great job John!

Mal is developing his own personality!

Meant to post this on April 7 – not sure why it got stuck in my drafts.

Michael mentioned yesterday that Malachai is finally developing a personality of his own. He brought up how it was sort of blunted before, you could interact with him, but there wasn’t anything about it that screamed, this is me, I am Malachai.

He loves Alice Cooper. He wants to dress up like him for Halloween. He loves scary movies and fast rides. I kind of attribute part of that to his sensory issues (if he needs BIG input physically it makes sense he’d love roller coasters and stuff, and if he needs it physically, why wouldn’t he need BIG input mentally too? So scary stuff = more input to his brain) but it’s giving him and Michael something way cool to bond over.

He said something yesterday and I can’t remember what it was (Michael told me I should have posted then and there lol Silly me for not doing it) but it was what brought on this conversation. He might be coming up on seven, but he is finally turning into… himself. It is giving me great joy to see it happen. Dorian had his own personality around 3 or 4, and Eshiva is loaded with personality, but Mal… he was just kind of rolling along. Now he pops up with little quips and stories and is fierce about what he likes and doesn’t like and what he does and doesn’t want to do and why (as opposed to being engrossed in one thing and woe be unto you if you tried to do something else).

It’s not all sunshine and roses, but this is just amazing to me.

My friend Sam and her daughter and their arthritis walk

First, I want to say, please do not feel compelled to donate to this cause or join her walk in person. If you cannot/do not want to, please just pass it on to one of your friends or extended family members. If we were still in the DC area, I’d totally make the drive up to walk with them.

This is from my friend Sam, and her story just breaks my heart. She has had one thing after another in her family, and it hits just too close to home to not effect me. I am not going to share her back story, it’s not mine to share. Suffice to say, she is just an amazing woman and I have a lot of respect for her and her entire family.

Walk for Savannah!, okay, its really a walk for arthritis, but we’re egotistical ;)
Cut & pasted from the lame-o email I just sent out…….

It’s that time of year again!

As you know, having arthritis has greatly affected Savannah’s life. This is a way for her to take some control of her disease and have some fun in the process.

The walk is being held at Battery Park on Sunday, April 25th at 10am.

We had a fantastic walk last year and I’d like to see even more of you participate this year. It means SO much to Savannah. It’s a great outing for a great cause in a beautiful place. If you’ve walked with us before, you know how much fun we have. If you haven’t…well it’s time you did! Please do your very best to join us…and bring your friends, co-workers and neighbors. The more the merrier! Hope to see you there.
Here’s her team page:

http://batterypark.kintera.org/2009/teamsavannah

If you can’t come please consider making a donation smile.gif And please feel free to forward her Team Page to your friends. We can use all the help we can get!
Thank you
-Sam

Our detal saga continues

Eshiva went this morning and had two crowns put on her front teeth. She is an angel at the dentist.

We spoke to the dentist about Malachai (again) and I explained to her that our speech pathologist (who can’t call her directly as she is a student, but she is amazing) said that simply removing the teeth would be detrimental to any progress he has made. I explained that he was 100% unintelligible and not having the two front teeth would send us right back to square one.

She explained our options, but it boiled down to the fact that since he will not tolerate having x-rays done, they just have no clue what to expect. She said they could go in, expecting to do crowns, but if the cavities are to the nerve, they have to pull. Because he already has crowns on all the molars they cannot cement a bridge in place and she is worried that using a temp bridge (one that comes out) would be more trouble than it’s worth (he could swallow it, it could get lodged in his throat, he could lose it…)

I said I hate to Benadryl him up just for x-rays, but if we do them and find out the cavity isn’t as bad as all that and they can do the crowns or just leave the teeth until they fall out on their own, I’ll do it. She sent us home with the x-ray tab to get him used to it being in his mouth, so maybe they can do the pictures without the Benadryl. I doubt it, but maybe!

Michael is taking him in next Thursday.

Updatey Goodness!

I haven’t updated in a while… lots to say! Let’s start with the good news. I sent this email to family a few days ago:

Just spreading a little fantabulous news, Malachai had his therapy evals last week, and he is done with PT! This is amazing, because not six months ago he would fall over standing still. No joke. Now he can balance on one leg so long he can’t count that high (ok, maybe he can, but it’s a long time!)  He is still in speech and occupational therapies, but those are improving too. They will re-evaluate him in another six months. Maybe in the next six months he will learn how to sit in, and stay in, a chair ;)

Not only is therapy going well, but he only missed one word on his spelling test today (out of ten words) and he has been helping me read Coraline at night. His speech therapist suggested I talk to the school and see what kind of literature we can tie into his daily work to keep him interested. He reads like crazy for her, not so much for me. Apparently, I just hadn’t picked the right books. We’re reading The Tale of Despereaux next (Dorian’s choice). I think I will be moving a bunch of books down the shelf for Eshiva, and finding some more appropriate books for Mal & Dor.

Speaking of Dorian, he is doing basketball after school once a week and he loves it. I think we’ll continue to do it once it’s up. It runs in five week sessions and he started last week. I looked into the local rec center for something for both the boys to do, as our PT suggested Mal do some type of sport. I don’t know what, but we’ll find something. I think they are looking into karate (ok, I am pushing karate) but I am not going to push it if he’s really not into it. We were also thinking bowling, but the PT specificaly said sports that work the entire body. We need to increase (and maintain) his muscle tone, as it’s significantly “below age level.” Eshiva is going to be taking a dance class once a week in the mornings, and she is uber-excited about that. She wont stop talking about it, in fact.

Shivie is a little chatterbox, and thinks she’s a princess. She recently discovered dinosaurs (and I wish we lived closer to DC, because there are no decent dino exhibits around here that I can find) and barbie. She turns four on Feb 10th and woe be unto you if you try and tell her she’s three.

Everyone else is well. Dad and Michael and still employed (yay!) and I am still getting enough work to buy fun stuff by freelancing (also yay!). Michael and Sara are looking into the SAT and making plans and doing all that fun 17 year old stuff.

Ah… I think that wraps us up! I’m sure there is more, but it’s daily stuff. I was just so excited about Malachai! He is still having troubles, but there is a light.

and I posted this to PM’s yesterday:

Michael was given written notification today that the therapy place we go is closing on Friday.

Fucking economy.

They are going to try to farm everyone out to other locations, and we may be able to keep our OT if the other place she works can fit him in (and if they take our ins and if it’s in a reasonable drive). Our ST was an intern.

What really stinks is I really, really like our ST, and WTF giving us one weeks notice?

I know we can find someplace else (hell, maybe the place a few blocks down the street takes our ins and offers what we need) but this still stinks.

and I posted this today as a follow-up:

Yay!!! Our rockin speech gal called me up this morning and told me that she interviewed this morning at a place that is even closer and they are working their hardest to absorb all of the speech therapists AND their clients AND keep the same schedule!

She gave me the number of the new place, and I left a message around 10AM. She phoned me back around 5:30, apologized for it taking so long to get back to me, and told me what was going on. They do take our insurance, and are working to have the approvals transferred to them from our current place. She is hoping to start Monday!

We see Courtney tomorrow and Thursday and I am just thrilled it sounds like we won’t have a lapse, at least here.

I still need to find out where the place our OT works is located (she was split between the two places I guess), if they take our ins, and if we can fit in over there. I really like our OT as well – not like I like our ST, but she is awesome with Malachai. I’d hang out with our ST, not so much with our OT.

But wait, there’s more! We’re adopting a new puppy!

So, we’ve been thinking about getting a companion for Malachai for a while now. Therapy dogs are quite expensive, and the “free” ones take a lot of paperwork and legwork. No doubt they don’t deserve it, but it was more than we needed. It’s not like we were looking for a seeing eye dog or anything, you know? So, we found this little guy! We’re picking him up either Thursday or Sunday.

He’s been there for a year! I can’t imagine why someone didn’t want to take him home, but I am glad they didn’t! We drove down to Ft. Lauderdale on Monday and went back to meet him. He is so friendly, and energetic and playful. He jumped up on Eshiva, but did not knock her down. The gal who showed him to us said he gets along with all the other dogs/cats in the rescue, have never bitten anyone, and is healthy. Apparently he was purchased from a pet store, and then got sick. He had demodectic mange (yes, just like our Yorkie) but his fur is full and thick and I didn’t feel any scabs or anything on his body. They said nothing about meds or anything else, and he is neutered. This is good, because Sasha is so sick, putting her through surgery to spay her would be too taxing on her immune system (so says the vet).

He is a year and a half old, and is the perfect size. Yay!

From the rescue site:
More About Patches/Atos: Patches was purchased from a puppy store. He is a sweet fellow who is good with other animals including cats. He is waiting for a forever home with lots of playmates or toys. Walks in the park or just around the block. Nice yard to play in but not totally necessary. Patches loves his toys!

Oh, he’s a beagle/basset mix. Cuteness!

Anything else? Probably not. I am sticking with good news right now.