From August 2:
OK, I only have the papers for PT, which came in the mail today, and recommend PT twice a week for 30 minutes each time. The ped. has to approve it and then we can make an appointment. Since we did the PT intake on Tuesday, and the OT/ST on Thursday, I figure we’ll have the other two reports on Tuesday of next week.
I think I may have spoken too soon when I said I prefer monrnings, because it didn’t really dawn on me that it probably meant keeping him out of school five days a week for up to an hour a day (to account for travel time too). OTOH, I don’t want to do it in the evenings because I don’t really have the time between picking them up from school, homework, making dinner, etc… and I’d have to take the other two kids with me. At least if it’s in the morning I only have Eshiva with me and Michael can go too, or one of us can take him alone and the other can stay home with Esh. I guess we’ll see how it plays out.
We still haven’t heard about the aid for school but we have not gotten na rejection letter either, and school starts in just a couple of weeks. I am hoping it’s a good sign.
And today:
The OT papers came today, I wont even get into it lol This one was 10 pages of what he can’t do, from properly holding a pencil (and adjusting his shoulder/trunk to compensate for it) to not liking to go backwards or upside down to a bunch of other stuff (like eating, paying attention, sitting, etc..) and suggested 45 min twice a week for 6 months, then re-eval.
Still waiting on the speech papers, and I am at the end of my rope about how to handle these appointments. I think this is why I was so happy to not have ins. before. I remember this, all the appointments, all the schlepping around, and my mom only had one other child to deal with. I don’t know how this is going to work between wanting morning appts (so Michael is in the loop) and not wanting him to miss school…. I’ll really worry about it when it happens, I’ll talk to the ESE lady (she’s fantastic) before hand and figure it out. I know it will work, I am just feeling very overwhelmed. This hasn’t even started and we’re at 1.5 hours total so far, which isn’t a lot, but plus travel time, plus ST if they decide to do it (he does get 4x 30 min at school, so they might not, and I like the school speech lady).
Still no word on the aid, but no denial either. It’s a little late in the game for a denial letter, so let’s keep hoping!









